AIMS (Association for Improvements in the Maternity Services)
UK pressure group for better maternity care. Although a pregnancy- and childbirth-led organisation, the website includes excellent articles on the experience and perception of miscarriage and pregnancy loss, and AIMS continues to campaign for better care for parents suffering the loss of a baby during pregnancy or neonatally.
ARC (Antenatal Results and Choices) email ARC
Provides information and support for parents throughout antenatal testing and when a significant abnormality is detected in their unborn baby. Offers a Helpline, support network and literature for parents, families and professionals. Helpline: 0207 631 0285 Monday - Friday, 10am - 5.30pm
ASBAH Helpline: 0845 450 7755 email ASBAH
The Association for Spina Bifida and Hydrocephalus (ASBAH) provides advice and practical support for parents whose baby has been diagnosed with spina bifida and/or hydrocephalus.
BLISS (Baby Life Support Systems) Helpline: 0500 618 140 email Bliss
National charity supporting and providing information to parents of premature or sick newborn babies in special care baby units. Runs a family support helpline on Freephone 0500 618 140, Monday to Friday 10am to 10pm
The Child Death Helpline Tel: 0800 282986
The Child Death Helpline is a national freephone service staffed by bereaved parents. It is a joint venture between the Royal Liverpool Children’s NHS Trust Alder Hey and Great Ormond Street Hospital for Children NHS Trust. The Helpline is for parents or anybody affected by the death of a child of any age from pre-birth to adult, under any circumstances.
Child Death Helpline: Evenings 7pm - 10pm, Monday to Friday 10am - 1pm, Wednesday afternoons 1pm - 4pm
Compassionate Friends Tel: 0845 123 2304 email The Compassionate Friends
The Compassionate Friends (TCF) is an organisation of bereaved parents and their families offering understanding, support and encouragement to others after the death of a child or children. Our Helpline is always answered by a bereaved parent who is there to listen when you need someone to talk to, and can put you in touch with your nearest Local Contact. The helpline also offers support and information to those supporting bereaved families. It is open every day of the year - 10am to 4.00pm / 6.30pm - 10.30pm (GMT).
CRUSE Bereavement Care Helpline: 0844 477 9400 email CRUSE
Charity offering help to people bereaved by death, in any way, whatever their age, nationality or belief. Help includes counselling, bereavement support groups and advice or information on practical matters.
Ectopic Pregnancy Trust Helpline: 020 7733 2653 email EPT
Provides support and information to couples who have suffered an ectopic pregnancy. Offers a helpline and support network. Also supports research into the underlying causes, treatment and prevention of this life-threatening condition and strives to improve the diagnosis and treatment of ectopics within the medical profession.
Group B Strep Support (GBSS) Tel: 01444 416176 email GBSS
Group B streptococcus (GBS) is the most common cause of life-threatening infections in newborn babies in the UK, infecting around 700 babies of whom sadly 100 die. Group B Strep Support (GBSS) is a UK charity offering information and support to pregnant women and families affected by GBS, to inform health professionals about preventative care, and to support research projects.
Hughes Syndrome Foundation email HSF
Hughes Syndrome (antiphospholipid syndrome) - 'sticky blood' is characterised by arterial and venous blood clotting and is an important cause of recurrent pregnancy loss. Hughes Syndrome is the commonest treatable cause of recurrent miscarriage: the figure is up to 1 in 5. Furthermore, late pregnancy loss, fortunately an unusual problem in pregnancy, is very strongly associated with Hughes Syndrome. With a simple blood test, patients with a history of miscarriage or late pregnancy loss can be tested for Hughes Syndrome. The Hughes Syndrome Foundation was set up in 2000 to provide support and information to patients, the public and medical staff, as well as promote further research into the causes, effects and proper treatment.
The Miscarriage Association Helpline: 01924 200799 email The Miscarriage Association
Provides support and information for those affected by the loss of a baby in pregnancy. Offers a helpline (9am to 4pm), a network of support groups and telephone contacts across the UK, and a range of leaflets, factsheets and audiotapes. Also works to raise awareness and sensitivity amongst health care professionals through conferences, workshops and supporting clinical research projects.
Scottish Care & Information on Miscarriage (SCIM) Tel: 0141 552 5070 email SCIM
Offers a specialised counselling service for: miscarriage, stillbirth, neonatal death, and related issues such as; infertility, depression, stress, relationship difficulties, emotional support, employment issues, loss and bereavement.